MS CCSVI
| I’ve started this page to summarize and put in one place information and links to discussions on CCSVI
Chronic cerebrospinal venous insufficiency (CCSVI) describes a hypothetical disruption of blood flow in which the venous system is not able to efficiently remove blood from the central nervous system resulting in increased pressure in the veins of the brain and spinal cord which in turn results in damage to these areas. Recent reports have revived the idea of an association between inadequate venous drainage and multiple sclerosis. |
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This is MS Website. This is MS is an unbiased, unaffiliated site dedicated to eradicating Multiple Sclerosis. |
| The following is taken from the This is MS Website:1. What is CCSVI?
Chronic cerebrospinal venous insufficiency… it’s a chronic (ongoing) problem where blood from the brain and spine has trouble getting back to the heart. It’s caused by stenosis (a narrowing) in the veins that drain the spine and brain. Blood takes longer to get back to the heart, and it can reflux back into the brain and spine or cause edema and leakage of red blood cells and fluids into the delicate tissue of the brain and spine. Blood that stays in the brain too long creates “slowed perfusion”…a delay in deoxyginated blood leaving the head. This can cause a lack of oxygen (hypoxia) in the brain. Plasma and iron from blood deposited in the brain tissue are also very damaging. 2.How is it related to MS? Every MS patient tested so far has it. Over 500 MS patients in Italy have it. They were tested by Dr. Paolo Zamboni. Forty five MS patients in the US have it. They were tested by Dr. Michael Dake. Six clinically defined MS patients and 3 probable MS patients have it in Poland. They were tested by Dr. Marian Simka. 1700 patients and controls are being tested for it by Jacobs Neurological Institute at SUNY Buffalo. 8. Yikes! If I have CCSVI, what can be done about it?? The good news is that Dr. Zamboni has been testing a procedure (the Liberation procedure) in his Italian patients for two years. He goes into the femoral vein endovascularly (thru a small incision at the groin) and goes up into the blocked vein and opens it with a small balloon. He’s done this to hundreds of patients, and many have greatly reduced symptoms and healing. He’s also done this procedure on 18 MS patients who were in the hospital in the midst of bad relapses. The relapse symptoms stopped and were reversed in 4 hours to 4 days from having the balloon procedure…without steroids! Dr. Michael Dake at Stanford University has been using stents (metal tubes) to keep the veins open if the ballooning does not keep the veins open. He also goes in endovascularly. Patients have had reduction in fatigue, heat intolerance, spasms and some have had improved vision and mobility. Dr. Dake has been performing these procedures at Stanford since May. Dr. Marian Simka is overseeing these stenting and ballooning procedures in Poland. Stay tuned! We’ll have more to report in the months ahead! |
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W5 : The Liberation Treatment – The Nov 21, 2009, W5 episode that features the work of Dr. Paolo Zamboni. |
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Globe and Mail article published on Friday, Nov. 20, 2009. Researcher’s labour of love leads to MS breakthrough. New way of thinking about debilitating disease has yielded stunning new treatments – but MS societies urge sufferers to be cautious before experimenting. |
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MS Society of Canada announces request for research operating grants related to CCSVI and MS. Toronto, ON – November 23, 2009 |
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Facebook page CCSVI in Multiple Sclerosis |
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Facebook page CCSVI at UBC MS Clinic – Information and Support |
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Facebook – my page |
| Jim Marsh (905) 439-5530, toll free 1-866-340-1050 jimwmarsh@hotmail.com www.facebook.com/jimwmarsh |